Skip to main content

Day 22-23

I recently read an article in a medical journal comparing the quality of life between a food allergy and type 1 diabetes as the same. Although I can see the generalized reasoning, I was surprised that the medical advisors in this journal would even put that comparison together for the readers. Common knowledge of food allergies is so rare in the general public. Even though everyone seems to have heard of a child in someone's class that has a peanut allergy, I have yet to meet one single person that has heard of an anaphylactic milk protein allergy, unless it was a family living with it. So I think it is a mistake to take an unknown condition and couple it with a known condition, and then say they are about the same in comparison. This just leads to more confusion when, I think, these medical journals have a great platform to initiate social responsibility for food allergies. What I mean by "social responsibility" is that as a society we should watch out for one another.

I was at the park with my daughter last year when a Mom's group showed up with their children and served them Go-Gurt Yogurt packets. The kids ran throughout the park with these snacks in hand so I approached the Mom's, stated my case about my child's food allergy, and politely asked if they could eat at the picnic table so my child could play safely. I was told no. This was when I began to think about social responsibility. I cannot imagine any scenario that I would say "no" to regarding stopping an action I was doing because it could harm another's life. I was floored. I'm constantly told how I cannot expect change, or people to make an effort, or anything positive to the case about food allergies. Social responsibility requires little effort --- just a commitment to try to think about if you are putting a child in harms way by your actions,  then communicating that information with the child's parent giving them the opportunity to leave an unhealthy situation. Sharing information with a FA parent helps us keep our children safe. It is so simple. It's not about other's having to care for our children or assume the responsibility. I'm grateful to the people I've met that do try. I'm optimistic that others can catch on. The more I hear about what I cannot expect, the more I see the need for further advocacy for the people living with life threatening food allergies.

Comments

Popular posts from this blog

Day 59-65 "What is anaphylaxis"

All parent's of young children living with a life threatening food allergy live in a constant, round the clock state of fear. Fear of the unknown, fear that our children cannot communicate their immediate needs and symptoms, and fear of putting anyone else in charge of managing this extremely dangerous allergy. Releasing control and delegating responsibilities is definitely where I struggle the most because, for me, handing that over to another person can be the biggest mistake I make. I'm not at all worried that a caregiver would not follow our rules and feed my darling junk food or too much sugar, let her watch too much TV, not use her manners, or let her negotiate her way on everything--- like most parent's would be concerned with. I'm worried that they might misread an ingredient, and show up at my house with cow's milk proteins lingering on their body or garments. I'm worried that they are oblivious to the MANY different ways that milk proteins are presen...

Going Global With Food Allergies

Have you ever looked at a map of the world, all laid out in front you, and thought, "hmmm...where to go?" Even if you are an adventurous, free-spirited person, food allergies have a way of paralyzingly our curiosity through fear. The constant need to have to be aware of all of our surroundings, naturally develops into taking less unnecessary trips; Always packing our own food and knowing the specific details of the environments we plan to enter ahead of time. The lack of general knowledge of food allergies in the public can force us into creating our own safety bubble. It's a cause and effect reaction that can force families with very severe food allergies to first, find themselves excluded, and then inevitably, because of their previous absence, not given any consideration.  People and the public, in general, can become a safety hazard. To make matters even more difficult and suspect, food itself becomes a weapon because of cross contamination, poor labeling, and very l...

Perpetuating circumstances...

Seeking out the responsible culprits causing allergic reactions is an all encompassing role as a FA parent.  When your child is touch allergic in addition to ingestion and airborne exposures the speculations are greater. I cannot count how many times my little one has had an allergic reaction to something unknown to us, leaving us to retrace every movement we've made.  Could something be on the neighbors ball that we just played together with? Could it be something in the rubber on the balloon? Maybe something on the outside of a plastic grocery bag that a grocery clerk transferred proteins to after touching others people's milk items first? Did someone wear their shoes in our home and leave residual milk proteins somewhere? Where is this invisible milk protein lingering so we can clean it or avoid it?! It's a perpetual feeling that you didn't think of "everything" and you let your child down. We really do think of things on a microscopic level, and that's...