I love rainy days when staying at home has a reason other than recuperating from an allergic reaction or preventing one. Our lifestyle and perspectives are developed with food allergy safety being our first criteria. This is something we have honed in on and it is the greatest difference we have with everyone we know. It's a constant level of decision making that goes beyond general parenting. It's similar decisions that need reevaluation over and over again. We've had family in town and have managed to pull together to have fun and create safe environments while doing it. When people come together to help focus on similarities and not dwell on the differences, life is always beautiful. We are so blessed to have a family dedicated to making the efforts and loving us all through the gray areas. The biggest things we require are patience, understanding that our hearts are in the right place, and effort. We aren't on this journey alone because we all share the same world. We're truly grateful when ANYONE else sees that too.
All parent's of young children living with a life threatening food allergy live in a constant, round the clock state of fear. Fear of the unknown, fear that our children cannot communicate their immediate needs and symptoms, and fear of putting anyone else in charge of managing this extremely dangerous allergy. Releasing control and delegating responsibilities is definitely where I struggle the most because, for me, handing that over to another person can be the biggest mistake I make. I'm not at all worried that a caregiver would not follow our rules and feed my darling junk food or too much sugar, let her watch too much TV, not use her manners, or let her negotiate her way on everything--- like most parent's would be concerned with. I'm worried that they might misread an ingredient, and show up at my house with cow's milk proteins lingering on their body or garments. I'm worried that they are oblivious to the MANY different ways that milk proteins are presen...
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