Skip to main content

Day 32, 33,34

As I write these posts I think "why would anybody care to hear a daily account of our little life and how a food allergy controls it". I realize that it may not be that interesting to everyone, but I'm reminded of why I started this blog. I want to share our challenges, show our perseverance, and remind myself every day that my faith in everything important to me is huge.

After being told that Sophia will not outgrow her allergy, but will continue to grow in severity, I am no longer holding onto the concept of a cure. Instead, I have faith that Sophia will learn how to manage the complexity of her condition and persevere through her life stronger for having gone through all of this. This is a much more realistic and obtainable goal. I have faith that people will understand that the safety of my child often means missing out on moments with their child, or them individually. Because the nature of Sophia's food allergy is so unknown and the knowledge underdeveloped, I will always tell everyone everything I know. A life threatening food allergy affects the lives of everyone. It isn't just about meals and snacks. It's about building relationships and maintaining them even when they require a BIG effort and a lot of work. It's about small children who don't understand why they are different and left out of everything. It's about trying to get enough of all the nutrition needed when you're allergic to so much. It's about deciphering an emotional response to an allergic reaction or just plain 3-year-old whining. It is so multidimensional and that is why I see that a daily account is needed. Thank you to everyone who read my first month and decided to click "join this site"and follow me daily. Your comments are always welcome too. This journey has just begun and I appreciate the people who lend an ear and an open mind to learning about life with a severe food allergy. For 3 years I've heard people tell me what I can't expect and make excuses for common ignorance. This is my attempt to change that. I may only change one person's perspective but that is more than I was told I could.

Comments

Post a Comment

Popular posts from this blog

Day 59-65 "What is anaphylaxis"

All parent's of young children living with a life threatening food allergy live in a constant, round the clock state of fear. Fear of the unknown, fear that our children cannot communicate their immediate needs and symptoms, and fear of putting anyone else in charge of managing this extremely dangerous allergy. Releasing control and delegating responsibilities is definitely where I struggle the most because, for me, handing that over to another person can be the biggest mistake I make. I'm not at all worried that a caregiver would not follow our rules and feed my darling junk food or too much sugar, let her watch too much TV, not use her manners, or let her negotiate her way on everything--- like most parent's would be concerned with. I'm worried that they might misread an ingredient, and show up at my house with cow's milk proteins lingering on their body or garments. I'm worried that they are oblivious to the MANY different ways that milk proteins are presen...
Post a Comment
Read more

Perpetuating circumstances...

Seeking out the responsible culprits causing allergic reactions is an all encompassing role as a FA parent.  When your child is touch allergic in addition to ingestion and airborne exposures the speculations are greater. I cannot count how many times my little one has had an allergic reaction to something unknown to us, leaving us to retrace every movement we've made.  Could something be on the neighbors ball that we just played together with? Could it be something in the rubber on the balloon? Maybe something on the outside of a plastic grocery bag that a grocery clerk transferred proteins to after touching others people's milk items first? Did someone wear their shoes in our home and leave residual milk proteins somewhere? Where is this invisible milk protein lingering so we can clean it or avoid it?! It's a perpetual feeling that you didn't think of "everything" and you let your child down. We really do think of things on a microscopic level, and that's...
Post a Comment
Read more

Healthier Food Allergy Awareness Week!

Good day food allergy families and family members! It's Food Allergy Awareness week, so I wanted to share some intriguing and magnificent news that I've learned in hopes to educate and support others.  *ALLERGIES INSPIRE HEALTH As a "food allergy mom" to a child with a milk allergy (among other new ones), I've learned more about food than I ever thought I'd have an interest to. Removing your child and family from the billion dollar milk BIG BUSINESS industry has changed our lives. As most people look at us with pity and bewilderment about how a human can survive without milk, we find ourselves soaring into unchartered territory and thriving! We've learned so much about the food industry that has completely changed our lives ...for the better. It's a one way road to the effect that once you learn something, you can never "unlearn" it. In fact, the challenges that food allergy families face come more from lack of compassion toward safety, unwil...
Post a Comment
Read more