Skip to main content

Day 9

Sophia's imagination is truly extraordinary! She lives a very protected life and sometimes I worry it borders on isolated. I try to make something new every day that is fun and engaging and provides her with lot's of exercise.  This morning I brought back breakfast and ballet. She climbed onto the counter, selected a music selection from the ipod, and started her beautiful performance. There's a song by Marie Digby called "Miss Invisible" and that is my 3 year old's favorite song! She really thrives at imagination and creativity especially when there's emotion. As I egged her on to do dance moves I had taught her, she pleaded for me to "leave the stage" because she "deserved a turn to make up dances too". I thought about that for some time and, after pondering how the heck she knows what deserve means,  got an overwhelming sense of hope. Sophia is such a strong willed and assertive individual.  I know that will be a very favorable attribute in her life. The struggles that lie in front of her dealing with a life threatening food allergy seem endless. I know my little girl will make her points heard, and will notify people when she deserves a turn! I'm so proud to be her Mama.

Comments

Post a Comment

Popular posts from this blog

Day 59-65 "What is anaphylaxis"

All parent's of young children living with a life threatening food allergy live in a constant, round the clock state of fear. Fear of the unknown, fear that our children cannot communicate their immediate needs and symptoms, and fear of putting anyone else in charge of managing this extremely dangerous allergy. Releasing control and delegating responsibilities is definitely where I struggle the most because, for me, handing that over to another person can be the biggest mistake I make. I'm not at all worried that a caregiver would not follow our rules and feed my darling junk food or too much sugar, let her watch too much TV, not use her manners, or let her negotiate her way on everything--- like most parent's would be concerned with. I'm worried that they might misread an ingredient, and show up at my house with cow's milk proteins lingering on their body or garments. I'm worried that they are oblivious to the MANY different ways that milk proteins are presen...
Post a Comment
Read more

Perpetuating circumstances...

Seeking out the responsible culprits causing allergic reactions is an all encompassing role as a FA parent.  When your child is touch allergic in addition to ingestion and airborne exposures the speculations are greater. I cannot count how many times my little one has had an allergic reaction to something unknown to us, leaving us to retrace every movement we've made.  Could something be on the neighbors ball that we just played together with? Could it be something in the rubber on the balloon? Maybe something on the outside of a plastic grocery bag that a grocery clerk transferred proteins to after touching others people's milk items first? Did someone wear their shoes in our home and leave residual milk proteins somewhere? Where is this invisible milk protein lingering so we can clean it or avoid it?! It's a perpetual feeling that you didn't think of "everything" and you let your child down. We really do think of things on a microscopic level, and that's...
Post a Comment
Read more

Healthier Food Allergy Awareness Week!

Good day food allergy families and family members! It's Food Allergy Awareness week, so I wanted to share some intriguing and magnificent news that I've learned in hopes to educate and support others.  *ALLERGIES INSPIRE HEALTH As a "food allergy mom" to a child with a milk allergy (among other new ones), I've learned more about food than I ever thought I'd have an interest to. Removing your child and family from the billion dollar milk BIG BUSINESS industry has changed our lives. As most people look at us with pity and bewilderment about how a human can survive without milk, we find ourselves soaring into unchartered territory and thriving! We've learned so much about the food industry that has completely changed our lives ...for the better. It's a one way road to the effect that once you learn something, you can never "unlearn" it. In fact, the challenges that food allergy families face come more from lack of compassion toward safety, unwil...
Post a Comment
Read more