Skip to main content

TRUST & the Tug of War!

Perusing through blogs and FaceBook posts I see the tug of war amongst food allergy parents. It ranges from "put your kid out there in everything and let them live life" vs. "hold on to them cautiously and monitor them closely". I've heard comments like "it's in God's hands", or "you can't expect others to change". To start my thought,  I have an inexplicable respect for any parent who manages Food Allergies in a world so content on supporting the wrong end of the cause. I think that the tug of war comes from the social frustrations accompanying our lack of control and trust in society. Frustration that we aren't going to be able to control things so we have to give up a little of that control and put responsibility on others. By doing this you are allowing a little room for error and therefore leaving the control in "God's hands". An example of this invisible trust is sending your kids to school and trusting others to replace your vigilance. After all, is there even another option? What about if you HAVE to go to work to even feed these children, as metaphoric as that thought is. Working to feed the mouths that are allergic to most everything in the mainstream American diet. Not to mention the school system that's full of pizza, cupcake, and ice cream parties. Trust that a note home with the kids will make the other parents know how to prepare their children to share environments with yours, without making FA children feel like they have leprosy. My point is not to compromise the integrity of the choices FA parents have to make, it's to point out that this society makes them have to.

Being a FA parent is tougher than anyone outside of it gives credit for. We learn how to keep our little ones safe, teach others (across all the personality barriers) how to do it, try to get others to care enough to do so, and hold people responsible for their actions when we are passing around trust. We don't just trust people because we share bloodlines or have known them forever, or because they have a title like doctor or teacher. Then, in seeking out camaraderie, we look to other FA parents and either get judged because what is working for them isn't something we are comfortable doing, or we feel stupid for asking anything anyway. I'm homeschooling my daughter because it's what's best for her and we have the means and ability to do so. I have recently, and not so recently, received much criticism regarding that fact. Someone even told me that they would do that for their child, but they really want them to have a "good" education. Um, that is the point right? I respect everyone's decisions on how they choose to parent their children, but let's not step on each other's toes while trying to support one another. We need one another because we have enough of an uphill battle without pulling one another down along the climb.  I don't like to see this bantering back and forth about who's parenting better and who has the right answers. The only thing that really matters is that we are all doing our best and reaching out to the only other people who face the same obstacles for comfort and support.

As for me, I don't leave much rope to get ourselves hung on in my parenting style. I am conservative and protective, but please remember that my daughter is anaphylactic to even the touch of a milk protein, so it really comes with the territory. I don't judge anyone in complete honesty, but I do remember every time someone thoughtlessly puts dangers (milk proteins) near my daughter.  I wouldn't be able to teach her and protect her if I didn't pay attention to this.  I remember every time people don't care (or think) enough to remove their shoes at my house, or wash their hands, or just blatantly show up   with a cheese sandwich, when so much thought and effort was put into keeping everything safe. Our home is our sanctuary for our daughter. It's the ONLY place in her world that she can be free from worry and fear of an allergic reaction. Don't compromise that sense of peace to my family for any reason. To me there is a difference between what's in "God's hands", and what He put in my hands. We have some level of control over our lives and all of us need to be accountable for that.  My parenting style is what works in my family. The choices I make for my daughter are just that-- my choices and I am accountable for those choices.  Telling someone to change is not supporting them. Respecting their choices is.http://vimeo.com/73807334

Comments

Popular posts from this blog

29, 30, 31

I love rainy days when staying at home has a reason other than recuperating from an allergic reaction or preventing one. Our lifestyle and perspectives are developed with food allergy safety being our first criteria. This is something we have honed in on and it is the greatest difference we have with everyone we know. It's a constant level of decision making that goes beyond general parenting. It's similar decisions that need reevaluation over and over again. We've had family in town and have managed to pull together to have fun and create safe environments while doing it. When people come together to help focus on similarities and not dwell on the differences, life is always beautiful. We are so blessed to have a family dedicated to making the efforts and loving us all through the gray areas. The biggest things we require are patience, understanding that our hearts are in the right place, and effort. We aren't on this journey alone because we all share the same world....

Year 2 begins...

When I originally began this blog, it was my intention to document one year in the food allergy lifestyle. I wanted to expose and shed light on the truths, obstacles and how they're overcome with positive intention. I wanted food allergy outsiders to see what it's all about. I wanted to articulate the difference between feeling sorry for us and feeling apart of it. I always say how I think it's absurd to feel sorry for us. We have a beautiful, brilliant, healthy daughter we are so blessed. If people want to place a feeling they should feel motivated to do what they can to make shared environments safe. The continuous and deliberate efforts, and the acts of compassion that shape and define the growing group of people called food allergy parents, and their children who persevere while creating the new "normal" example of a happy childhood. I have since realized I have more to say because, although we have been at this for 5 years, it is, after all, just the beginnin...

Day 12

I cannot relate to parents who are spontaneous! There are so many things on my checklist before leaving the house that I cannot imagine hopping in the car and seeing where the day takes us. I'm pretty sure I was that person before being a parent, but really who can remember. I run a tight ship with a plan and a detailed curriculum for every outing now a days. For the past two days we have been doing some remodeling in our home. Because of this, I've needed to get the children away from the dangers and out of our normal "protected" environment. I've tried to keep things outdoor in an open aired environment, but there is always room for error out of my control. Control is something I clench to these days. Controlling our surroundings and the environments we put our daughter into are the "only" things that have prevented allergic reactions and worked for us. Relocating our lifestyle for even a day is a crippling task. It is so easy to get overwhelmed-- bu...